Antonio is second of the family, born in 1991. He is followed for severe haemophilia A by Dr Claudia Khayat. He suffers from joint problems with his knee as a target joint. He must urgently benefit from a synoviorthesis of the knee. It could be done easily if Factor VIII concentrate are available. Otherwise, he will have a joint destruction, loss of mobility, lot of pain and more hemarthrosis in the other joint. For the synoviorthesis and musculosquelettal rehabilitation, he needs around 50000 UI of Factor VII concentrate. It could be regrettable not to do it. The availability of factor concentrate would certainly transform his life. He could be happy and productive in the society.
Haemophilia A is a congenital bleeding disorder. Because of deficiency in coagulation Factor VIII the patient has a delay or is unable to clot after an injury. Thus if untreated the patient complains of pain, hemarthrosis, muscular haematoma and life threatening bleeding. Appropriate treatment based on infusion of Factor VIII concentrate, prevention and psychosocial support allow the patient to have a normal and productive adult life.
Unfortunately, haemophilia is an under recognised disease in Lebanon, and there is no national policy . Since 1996 the Ministry of Health contributes to the treatment of patients in delivering small quantities of Factor concentrate free of charge every month to each patient. But since 2005 the Ministry stopped contributions and no more treatment is available.
Any help concerning the young Antonio is welcome.
Based on the report by Dr Claudia Khayat
Beirut, July 27, 2007
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment